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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Yes that Joyous news arrived on the door mat in a copy of the letter sent to my GP. Along with some info on the condition and that it is something like 1 in a hundred thousand people who get it.
7 sufferers out of 8 of those are auto immune disease caused. here is some more about it if you are interested:
http://www.addisons.org....nfo/addisons/page1.html
http://www.mims.co.uk/Pa...82404/Addisons-Disease/
Deep Joy!
Richard has been nagging me to get a medic alert jewelry re the diabetes and other conditions, now I will definately need it.
Mind you with my list- I will look like BA BARACUS!!!!
LOL! how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
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I don't know what to say, Jenni. "Sorry" seems so inadequate. And I'm sure that it's no consolation to know that you've been picked as that one in a thousand!
I am truly sorry though, Jenni; you don't deserve this. Wish there was something I could do ....
Anthea xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 176
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Yet more drugs? I bet you rattle when you walk. While we know you are special, at least wearing the extra jewelery will let everyone else know. Sending good thoughts your way.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Now there's a surprise! You just have to have everything! Oh Jenni - something else to try and drag your indominatable spirit down. Don't let it. Love you loads
Jeanxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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So sorry Jenni. 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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So very sorry Jenni, i will say a prayer for you tonight x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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Sorry Jenni . its a tiny bit like that for me at moment . i am waiting for a letter too come too say whay i have too add too the list . Which is getting long .So i now what you feel like .I have givin up now .As because while i feel fine and can walk swim drive help Harry and Doris do the red cross well then i petend i dont have it . just enjoy while it lasts .My joints are fine at momnent just a numb leg and the skin calm but that is the good work of the nurse who works hard and won,t give up till she has it right . i have a few appmoints coming up though i feel fine something is brewing and need double seeing 2 people at same time .same appoment .Its thought i have R.A P.A AND scleroderma and looking in the poss of having M/S or a stroke . but i don,t care i feel fine . christine The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Jenni - I'm so sorry to hear this. When are you getting to see someone to talk about all this? Thinking of you as always.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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So very sorry to hear this, Jenni. Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 312 Location: Surrey
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I've just read the information linky you put up Jenni. I wonder if your other conditions are so bad because of the effect of the Addisons! Hopefully, and maybe, your whole condition may improve once they start the replacement steroid treatment. All the best Stewart. A friend is someone who knows all about you but loves you anyway!
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 262
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Thinking of you Jenni. So sorry you have another diagnosis to contend with.
Diane x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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 Hi Jenni No thats not nice way hearing about your new diagnosis sorry hear this jenni. seems alot us getting additonal conditons just lately ,u need break i really feel for you hun,we need a its not on we refuse any more diagnosis club. warm hugs. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Jenni so sorry tio hear your news, I hope they get you some counselling to cope with this, especially on top of everything else. Thinking of you, and sending (((((hugs))))))  BARBARA
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Rank: Advanced Member
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Joined: 12/3/2009
Posts: 854
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So sorry our Jenni,
What is there to say apart from just that, sorry!
Lots of love,
Eleanor x
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Rank: Advanced Member
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Joined: 12/4/2009
Posts: 336
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Dear Jenni,this is rotten news, what a pity you can't win the lotery as easily that would be worth it. I hope they can work at controling it well for you. Take care. Glenys x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Jenni,
This is the pits!!, and so sorry to hear this...
I think we've had discussions on the forum before, but not sure, on the risks we take when taking steroids and possible side effects. Do you think the Addisons is linked to long-term steroid use- the drug we hate, but can't live without?
Love,
Barbara
XXXXXX
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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As I understand it barbara it is to do with long term steroid use. It has switched off my bodys natural steroid making ability and they are so knackered now after so many yrs on them- they have been fried. But as you see with all these things you can develop it as part of auto immune disease.
But for me, yes it has been the steroids that have tipped the balance.
Im only on 10mg a day now but have been on them solidly for about 3 yrs now. I have had massive pulses over many yrs, joint injections, depos and long spells of oral steroids. I have always hated them as for some reason my body is particularly sensitive to them.
I suspect, looking back, that this is why I was so desperately ill after having Bernice. I was taking 60mg a day when I gave birth by c section. With addisons after a section I should have been on drips with triple dose on for a good few days. For me the BP was very high and couldnt come down- eclampsia- but it is all regualted by that pituatory- adrenal gland system which has gone wrong in me, this is what nearly saw me off!
It also explains when I had my last really bad sickness bug that I ended up in hospital.
The last 5 yrs or so my admission blood tests have shown prbs with my salts. I have had to explain that I am so sensitive to steroid- someone should have put 2 and 2 together surely.
I feel quite angry that this was never picked up even by certain endocrinologists.
it also goes someway to explain why I was so ill AFTER having drug reactions.
GRRRRRRRRRRrrrrrrrr
how to be a velvet bulldoser
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Jenni,
I can well understand why you are angry about this, there is no doubt that it should have been picked up sooner.
It's disgusting the way you have been left to cope with this, surely someone should have investigated as to why you had such severe reactions to so many drugs. All the signs were there.
Have they offered you any treatment yet?
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Dear jenni
So sorry to hear the news- I don't know what to say really -except to send you lots of love
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